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For children living with
life-threatening or terminal illnesses, medical professionals are
obligated to ensure that suffering is minimized and medical technology
is used only when the benefit for the child outweighs the burden.
As children's needs are often
significantly different that those of adults, the American Academy of
Pediatrics has outlined recommendations for providing palliative care
for children.
The recommendations include:
- The development of widely
available palliative care and respite programs to alleviate
suffering and to promote the welfare of children and their
families living with life-threatening or terminal conditions.
- The implementation of a
comprehensive palliative care program from the time a child is
diagnosed with a life-threatening or terminal condition to
complement life-prolonging care, as well as assist if it becomes
clear that the child will not survive.
- Changes in the regulation of
palliative care to allow broader eligibility criteria, equitable
reimbursement of simultaneous life-prolonging and palliative care,
as well as respite care and other therapies beyond those currently
mandated.
- An effort by all general and
subspecialty pediatricians, family physicians, pain specialists
and pediatric surgeons to familiarize themselves with palliative
care practices for children. These should include palliative
medicine, communication skills and grief counseling.
- An increase in support for
research into effective pediatric palliative care. The
pharmaceutical industry must provide labeling information for
symptom-relief medications applicable to children. The
recommendations also reiterate the AAP's continued opposition to
physician-assisted suicide or euthanasia for children.
The American Academy of
Pediatrics is an organization of 55,000 primary care pediatricians,
pediatric medical subspecialists and pediatric surgical specialists
dedicated to the health, safety and well-being of infants, children,
adolescents and young adults.
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