There are many ways to obtain
information about hospice, and palliative care. Listed below you
will find links to various hospice related sites.
Hospice Web Sites
- The
American Hospice Foundation
Organization is dedicated to caring for those where cure is no
longer possible. Find publications, training workshops, and a
hospice directory.
- Hospice
Foundation of America
The Hospice Foundation of America is a group dedicated to
providing care, comfort and support to patients and their families
in the final stages of a terminal illness. At its site visitors
will find information about the organization and its programs.
- National
Hospice and Palliative Care Organization
The National Hospice and
Palliative Care Organization is the largest nonprofit membership
organization representing hospice and palliative care programs and
professionals in the United States.
- National
Association of Home Care
NAHC represents home care and hospice agencies. Includes news,
technical papers, hospice information and legislative updates.
- National
Hospice Organization
Hospice care is a compassionate method of caring for terminally
ill people. How to find a hospice, and membership benefits
- Hospice
Net
Dedicated to providing information and support to patients and
families facing life-threatening illnesses. Includes a free email
Q&A service.
- Hospice
and Palliative Nurses Association
The purpose of the HNPA is to exchange information, experiences,
and ideas; to promote understanding of the specialties of hospice
and palliative nursing; and to study and promote hospice and
palliative nursing research.
- Food
Safety for the Chronically Ill
Important information about preparation of foods for those with
AIDS, Cancer, diabetes, and kidney disease.
Books
Books under this heading were located
at Barnes and Noble, unless otherwise
noted.
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What to Eat When You
Don't Feel Like Eating
James Haller
An invaluable resource for those preparing food for those with
serious illnesses. Simple, quick, inexpensive cooking to make
food taste incredible because it has to taste like it is doing
something wonderful for you because that's the essence of
nurturing. |
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The
Grace in Dying: How We Are Transformed Spiritually as
We Die
Kathleen
Dowling Singh
This landmark revisioning of the stages of dying,
brilliantly conceived and beautifully written, reveals how the
dying process naturally carries us through a profound
psychological and spiritual transformation as we reconnect with
the source of our being. |
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Don't
Ask for the Dead Man's Golf Clubs: What to Do and
Say (and What Not to) When a Friend Loses a Loved One
Lynn
Kelly
It's hard to know how to help a
friend who is grieving. Drawing on experience and wisdom from
people who have lost husbands, wives, parents, children, and
siblings, this book offers hundreds of helpful, succinct, and
heartfelt suggestions on how to provide comfort, now and over
time. It explains what to say and do and what not to say and do.
Plus what to write, how to deal with the holidays, the
importance of hugs - and why never, ever to ask for the dead
man's golf clubs. |
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The
Mourning Handbook: The Most Comprehensive Resource
Offering Practical and Compassionate Advice on Coping with All
Aspects of Death and Dying
Helen
Fitzgerald
An
accessible, comprehensive source of practical advice on grief
and the mourning process, focusing in particular on the
complicated grief that accompanies accidental death, suicide,
missing persons, and secrets uncovered after death. |
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On
Death and Dying
Elisabeth Kubler-Ross
Kubler-Ross first introduced and explored the now-famous idea of
the five stages of dealing with death: denial and isolation,
anger, bargaining, depression, and acceptance. With simple
interviews and conversations, she gives the reader a better
understanding of how iminent death affects the patient, the
professionals who serve the patient, and the patient's family,
bringing hope, solace, and peace of mind to all involved. |
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Death & Dying Related Websites
American
Brain Tumor Association
The American Brain Tumor Association exists to eliminate brain tumors
and to meet the needs of brain tumor patients and their families.
American
College of Physicians Home Care Guide for Advanced Cancer
For family, friends, and hospice workers caring for persons with
advanced cancer at home, when quality of life is the primary goal.
Americans
for Better Care of the Dying
ABCD Caring is dedicated to ensuring that all Americans can count on
good end of life care.
Association
for Death Education and Counseling
The Association for Death Education and Counseling is a
multi-disciplinary professional organization dedicated to promoting
excellence in death education, bereavement counseling, and care of the
dying.
COMPASSION
IN DYING
COMPASSION IN DYING Federation provides national leadership for client
service, legal advocacy and public education to improve pain and
symptom management, increase patient empowerment and
self-determination and expand end-of-life choices to include
aid-in-dying for terminally ill, mentally competent adults.
Partnership
for Caring
a national, nonprofit organization devoted to raising consumer
expectations and increasing the demand for excellent care at the end
of life.
Web
of Care
The professional care provider's online source of healthcare products,
unique cost-saving tools and family support solutions AND
The family caregiver’s online source of support, featuring
healthcare information, chats, discussion boards, animated caregiving
skills and shopping.
suggest a site or book
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